People With Dementia: Capacity to Consent to Research Participation

People with dementia: capacity to consent to research participation.

Embarking on research with older adults whether in the community, in assisted living, or in the long-term care setting can be challenging from the very beginning. Depending on the purpose and specific aims of a study, the sample may include older adults who have some level of dementia. If so, the question of the older adult with dementia’s capacity to give informed consent may be in question. T...

Assessment of capacity to give consent to research participation: state-of-the-art and beyond.

Culture, consent, costs and care homes: enabling older people with dementia to participate in research.

OBJECTIVES To describe factors that support and inhibit recruitment and participation of people with dementia living in care homes. METHOD This article focuses on the methods used to recruit people with dementia to a longitudinal study that employed a mixed-method design to track events and care that older people with dementia experienced over two years in six care homes. A staged approach to...

Capacity to consent to research: The evolution and current concepts

DOI:10.1111/j.1758-5872.2012.00210.x Abstract The ethical problem of the need to conduct research on the very conditions that impair the ability to consent to such research is widely acknowledged. People with cognitive impairment and mental illness have an equitable right to research being conducted in areas relevant to their treatment and care, and should be given an equitable opportunity to p...

(Why) should we require consent to participation in research?

It is widely accepted that informed consent is a requirement of ethical biomedical research. It is less clear why this is so. As an argumentative strategy the article asks whether it would be legitimate for the state to require people to participate in research. This article argues that the consent requirement cannot be defended by appeal to any simple principle, such as not treating people mer...